With LIFE, we’ve designed an organization that provides guidance, information and support on the non-medical aspects of epilepsy care for the individual and their families, an outreach for public awareness of epilepsy, and quality of life programs for all who are interested. Our model relies on a philosophy of partnering with professionals and establishing collaborative relationships with individuals with epilepsy, their families and the community to deliver a unique comprehensive program of services.
In addition to obtaining good medical treatment, individuals with epilepsy must learn healthy behaviors and attitudes to optimize their well being and quality of life. Physician counseling alone is often inadequate to properly create a comprehensive program of wellness. Physicians in Nebraska and western Iowa may suggest reading materials, the internet, or support groups to their patients but cannot be assured that the patient or caregiver will follow through on proper lifestyle choices to optimize their epilepsy care.
Living well with epilepsy requires understanding the impact of choices, behaviors, and lifestyles on seizure control. Epilepsy wellness is impacted directly by diet, exercise, sleep, stress management (anxiety, depression, emotions, coping skills), social concerns (self-image, self-esteem, working, driving, dating, school), and interacting with family, peers, caregivers, and employers.
Furthermore, epilepsy is often accompanied with learning disabilities. Families need to learn how to manage a child’s education; individuals need to learn coping techniques to overcome deficits; and employers need to know how to provide accommodations.
In order for an individual to gain understanding regarding lifestyle choices or self-advocacy, they must first have the skills, knowledge, and support of others. For employers, the general public, schools, or business to understand accommodations and needs of someone with epilepsy, they must also gain an understanding of those issues.
Services In Nebraska and Western Iowa
Presently in Nebraska and western Iowa there is no comprehensive resource for people with epilepsy to gain the education, insight, and support to take charge of managing their condition, allowing them to be active members of their communities.
LIFE plans to eliminate this gap for services in the state of Nebraska and western Iowa. Although the primary population targeted is people with epilepsy, LIFE offers a resource for referrals to medical professionals and a support network for all who touch the lives of an individual with epilepsy.
LIFE Mission Statement
LIFE will enrich the lives of people with epilepsy by providing strategies and resources for overall wellness, with the goal of allowing persons with epilepsy to participate fully in all aspects of community life.
LIFE Company Vision
LIFE is dedicated to the development of viable, practical programs that encourage overall health and wellness for people living with epilepsy, their families, friends, employers, and the community at large, through creation and refinement of non-medical support tools and methodologies which incorporate all aspects of mental and physical well being.
Epilepsy Toolkit for Newly Diagnosed Patients and Caregivers
SAVE THE DATE
Annual Nebraska Walk for Epilepsy
Lifestyle Innovations For Epilepsy, Inc. (a.k.a. LIFE) is dedicated to providing support services to individuals living with epilepsy and their caregivers. The need for an in-depth educational toolkit became apparent when parents began coming forward and seeking more information about their child’s medical condition. Parents wanted more information about how epilepsy affected all aspects of their child’s life. They were in need of a guide to help them through this life transition, not just another pamphlet about seizures. It needed to be a tool which could be thrown in a bag and carried along to all types of appointments, with large pockets and a stationary supply pouch to help keep medical records organized. Parents needed a way to have contact information, business cards, and tangible resource information within easy reach whenever it was needed.
And so…this is when the Toolkit Project was created as part of our LIFE support services.
LIFE Tools Project