Lifespan Respite Subsidy Program: This program provides up to $125/month to cover the cost of respite services. Nebraska DHHS defines respite services as someone to come into the home to care for a person with special needs to give the primary caregiver a temporary break. An eligible person can be of any age.
Link to find out more about the program: http://dhhs.ne.gov/Pages/hcs_programs_lifespan-respite.aspx
The Nebraska Lifespan Respite Network also offers respite assistance during crisis situations.
Supplemental Security Income - Disabled Children's Program (SSI-DCP): This program is offered through the Nebraska Department of Health and Human Services. Individuals with disabilities who live in Nebraska, are age 15 or younger, and receive monthly SSI checks may be eligible. Respite is one component of this program. Link to find out more about the program: http://dhhs.ne.gov/Pages/hcs_programs_dcp.aspx
Disabled Persons and Family Support Program: An application can be filled out by caregivers of individuals with disabilities to provide supportive services such as: attendant/personal care assistance, home health care, housekeeping assistance, transportation assistance, and help purchase special equipment/home modifications. DPFS provides up to $300 a month of funding for services to help individuals to continue to live independently or help families stay together.
Link to application: http://dhhs.ne.gov/Pages/hcs_programs_dpfs.aspx
Aged and Disabled Waiver Program: The Aged and Disabled Waiver is offered through the Nebraska Department of Health and Human Services. Individuals of all ages may be eligible for this program if they are Medicaid eligible, meet nursing home levels of care, and can be served safely at home. Individuals who receive the Aged and Disabled Waiver services are eligible for respite hours. Link to find out more about the program: http://dhhs.ne.gov/Pages/hcs_programs_ad-waiver.aspx
Title IIIE Respite: Contact the Area Agency on Aging to inquire about the program and to access forms. Eastern Nebraska Office on Aging (ENOA): (402)546-1870
Title IIIE Respite Care is a service which provides short-term relief to a
principal caregiver providing care to a frail individual 60 years of age or older, or under the age of 60 with a medical diagnosis of early onset dementia (i.e. Alzheimer’s Disease) who cannot care for him or herself.
Partnerships in Aging 2013 Enrichment Grant: The PIA Enrichment Grant is offered for individuals who qualify for long-term care services. The application must be filled out by a professional (social worker, service coordinator, case manager, etc.) working with a disabled individual and his/her family. Link to application: http://www.piaging.com/iNetLocate_upload/24740/htmlarea/2013%20Blank%20Enrichment%20Request%20Form%20with%20Directions.pdf
Alzheimer's Association Midlands Chapter Respite Grant: The Alzheimer's Association Midlands Chapter offers a respite care grant to caregivers of individuals with a diagnosed form of dementia. Link to find out more about the grant (including the application and required physician statement): http://www.alz.org/midlands/in_my_community_helping.asp
ALS in the Heartland Respite Grant: In efforts to better serve caregivers of individuals with ALS, ALS in the Heartland offers respite care grants. Link to find out more about the Respite Care Voucher Program (contact form): http://www.alsintheheartland.org/register-for-services-support/
Autism Society of Nebraska Grants: The Autism Society of Nebraska offers an enrichment grant for individuals with an autism spectrum disorder. Link to application: http://www.autismnebraska.org/wp-content/uploads/2012/02/2012-asn-individual-enrichment-grant-application.pdf
First Hand Foundation:
Requests for help cover expenses for:
Treatment - Clinical procedures, medicine, therapy, prosthesis, etc. Equipment - Wheelchairs, assistive technology, care devices, hearing aids, etc. Displacement - Lodging, food, gas, parking and transportation for families of seriously ill children who must travel during treatment Vehicle modifications - Lifts, ramps, and transfer boardsLink to find out more about the grant (application available for download): https://applications.cerner.com/FirstHand/FirstHand_1a.aspx?id=28729
MS Society Mid America Chapter Grant
Alongside meaningful programs and services, the MS Society also offers a one-time per year funding assistance grant that could be used to cover the cost of short-term respite. For more information, contact their office at (402)505-4000. Link to application: http://www.piaging.com/iNetLocate_upload/24740/htmlarea/MS%20Society%20Grant.pdf
Federal & State
Epilepsy Toolkit for Newly Diagnosed Epilepsy Patients and Their Caregivers