With LIFE, we’ve designed an organization that provides guidance, information and support on the non-medical aspects of epilepsy care for the individual and their families, an outreach for public awareness of epilepsy, and quality of life programs for all who are interested. Our model relies on a philosophy of partnering with professionals and establishing collaborative relationships with individuals with epilepsy, their families and the community to deliver a unique comprehensive program of services.
In addition to obtaining good medical treatment, individuals with epilepsy must learn healthy behaviors and attitudes to optimize their well being and quality of life. Physician counseling alone is often inadequate to properly create a comprehensive program of wellness. Physicians in Nebraska and western Iowa may suggest reading materials, the internet, or support groups to their patients but cannot be assured that the patient or caregiver will follow through on proper lifestyle choices to optimize their epilepsy care.
Living well with epilepsy requires understanding the impact of choices, behaviors, and lifestyles on seizure control. Epilepsy wellness is impacted directly by diet, exercise, sleep, stress management (anxiety, depression, emotions, coping skills), social concerns (self-image, self-esteem, working, driving, dating, school), and interacting with family, peers, caregivers, and employers.
Furthermore, epilepsy is often accompanied with learning disabilities. Families need to learn how to manage a child’s education; individuals need to learn coping techniques to overcome deficits; and employers need to know how to provide accommodations.
In order for an individual to gain understanding regarding lifestyle choices or self-advocacy, they must first have the skills, knowledge, and support of others. For employers, the general public, schools, or business to understand accommodations and needs of someone with epilepsy, they must also gain an understanding of those issues.
Services In Nebraska and Western Iowa
Presently in Nebraska and western Iowa there is no comprehensive resource for people with epilepsy to gain the education, insight, and support to take charge of managing their condition, allowing them to be active members of their communities.
LIFE plans to eliminate this gap for services in the state of Nebraska and western Iowa. Although the primary population targeted is people with epilepsy, LIFE offers a resource for referrals to medical professionals and a support network for all who touch the lives of an individual with epilepsy.
LIFE Mission Statement
LIFE will enrich the lives of people with epilepsy by providing strategies and resources for overall wellness, with the goal of allowing persons with epilepsy to participate fully in all aspects of community life.
LIFE Company Vision
LIFE is dedicated to the development of viable, practical programs that encourage overall health and wellness for people living with epilepsy, their families, friends, employers, and the community at large, through creation and refinement of non-medical support tools and methodologies which incorporate all aspects of mental and physical well being.
Epilepsy Toolkit for Newly Diagnosed Patients and Caregivers
The LIFE Medical Alert Slap Wristband with USB Flash Drive is an easy to use wristband that alerts others of your medical condition. It's a new way to not only alert emergency personnel by the epilepsy text around the wristband, but to also provide additional healthcare information if a computer were to be available. You can be active without worrying about the wristband coming off!
The LIFE Medical Alert Slap Wristband with USB Flash Drive is a wristband that contains easy to fill medical forms. Simply wear the band when you are running, biking, out in the community, situations where a child may be separated from their parent or teacher - basically any place you could be involved in an accident. The easy to read text around the wristband alerts emergency responders that the individual has epilepsy. Even if there isn't a computer around to insert the USB, it's still alerting everyone involved in the emergency situation of the individual's medical condition. The wristband slaps on your wrist so it conveniently fits everyone (children and adults). Forms preloaded on the flash drive include a medication log, seizure action plan, student seizure action plan, seizure first aid brochure, and seizure observation record. Another useful tip is to take your slap wristband with you to your doctor's appointments. It makes it easy for any healthcare professional to review necessary information about your epilepsy care and management.
An Epilepsy Toolkit for Newly Diagnosed Patients and Caregivers
This project was initiated based on feedback provided to LIFE from focus groups and other venues from individuals and families affected by epilepsy. A significant need was identified for more resource options for individuals, parents, and professionals. In addition, a review of research data on epilepsy and caregiving yielded the following: caregivers are spending a substantial amount of time coordinating care, providing direct care to individuals, and exhibiting severe symptoms of depression. Individuals with newly diagnosed epilepsy and caregivers were in need of a comprehensive toolkit. This toolkit provides all of the essential tools needed to make educated decisions in regards to epilepsy treatment options and daily management. Please refer to the Toolkit tab in the navigation pane of the website for more information.